Category: Chronic Illness

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Feel destroyed?: Remember the Fire Lily

I am writing this blog from a hospital room. I have had a week of feeling absolutely destroyed. Can you imagine hearing the words that after 8 years, you might be in cancer remission? I heard those words a couple weeks ago but as the days ensued, I have had side effects that have put me in fear of being fed intravenously for weeks to come.

Sometimes life brings us a break, only to slam us down with something that feels even harder than the last blow. For me, the cancer treatment has caused scarring in my intestines that has made it impossible to eat for almost two months. Two months. Everyone who knows me knows that I absolutely live to eat, so not being able to have solid foods for such a long time has been quite the humbling experience. I am jokingly calling it my “wedding weight loss plan” but it has been pretty frightening. I watched my sweet mama go through a rapid weight loss that left her looking like a Holocaust victim, so I have some trauma that recurs when I face these trials for sure.

My sweet husband read me a devotional awhile back that told the story of the Fire Lily. Fire Lillies are a beautiful flower that only regrow in the event of being destroyed, most commonly by a forest fire. But when they do experience regrowth…awww the beauty.

Isn’t that the way in our journeys sometimes? We really don’t reach our full potential, or develop real empathy, or experience God at the deepest level, until we are smothered by experiences or trauma that leave us forest-fire dead.

I have seen some images lately of destroyed people: People destroyed by war, by life circumstances. I have met with people knocked down by divorce, betrayal and abandonment. But resilience can come when the trauma lifts, the sun shines again and we realize the strength we have because of Faith and Family and Friends….

Today, I got a little break and the scarring is letting liquids pass through. They were able to remove the tube down my throat and tomorrow we will try something a little more fortified and before long, I will be eating along with my family and friends. I am determined to be a Fire Lily.

How about you? What situation in your life needs to be overcome with the perseverance that asks you to push through scorched earth?

As always, let me know if I can help.

With love,


Sonia

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Social Media: What is the back story?

Just yesterday, I had the opportunity to post on Social Media about my amazing kids. As a family, we looked so happy and put together as we celebrated some things we have to be grateful for in this season of life. But part of me felt a little false, even as I posted, because the pretty pictures are not really the whole story. As someone who sits in the dark places with people, I feel an obligation to shed some truth so that those who struggle know that even in the bright moments of life, there is often pain, past trauma and overall life influencing how we travel on in this life journey. What those banner weekend pics didn’t show was the pain of the past week, the years of hard work and the overhanging gloom that chronic illness brings to our family.

Oftentimes when we observe people’s lives through the lens of Facebook, Instagram, or even from across the street, there is no way to know the whole story. When we only observe the glory moments, we open ourselves up to unfair comparison which can lead to all sorts of unhealthy. For example, the headline for our family did not include the IEP meetings from grade school, the obstacles overcome for the current title, last week’s hospital stay or the crying on the bathroom floor just moments before.

It can be so easy to look at other people and make assumptions. When we see the newly divorced woman looking amazing in her bikini, we often fail to associate the pain of rejection that may have driven that physical fitness goal. Or when we hear of someone getting promoted at work, we rarely think that maybe growing up in poverty may be a trauma that haunts that individual on a daily basis, causing them to anxiously pursue wealth as a pacifier. We only see the heavenly lights shining down.

Some of the shiniest people have dark pasts, unseen trauma, and heavy burdens to carry. It is important to remember that, when you are going through a difficult struggle and you can’t see a way out. Hold on for the stars to come your way and keep your eyes looking up so you don’t miss them!

As always, let me know if I can help.

With love,

Sonia

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Shaming: A Form of Cultural Manipulation?

Warning: I am on day 6 of a round of chemo so my inhibitions are down. You can only imagine what this one week on/one week off protocol  is like for the people I live with. But I got some things that my boundary seeking self just can’t let go…

There is a very popular post going around on Social Media that basically says that because you don’t know what is in a McDonald’s hamburger or what is in your deodorant or what was in the vaccines you had as a child, you should blindly accept what is being passed out as the savior of the world: the Rona Vaccine. Honestly, it is not my opinion of the vaccine that feels insulted, it is my intelligence.

Let me publicly state that if you want to get the vaccine, I encourage you to do so. If that alleviates your fears and allows you to interact with your elderly mom or the people you work with, by all means, do what you have to do. But listen up…if you try to SHAME me into your line of thinking or act as if you have some moral pedestal custom made for you, then I have to speak out for myself and my growing list of clients who are literally being traumatized by the smugness out there. 

The fact of the matter is that we will not know for a very long time what the lasting effects of any new drug will be. There may be many good reasons to risk the long term effects for the immediate result of having life get back to normal. People’s lives are being ruined by unemployment, mental distress, lack of human contact and if a vaccine offers a return to normalcy, let’s have an open discussion that evaluates the risks and the benefit of accepting those risks. As a cancer patient, I take straight poison in hopes that  killing cancer cells will outweigh the destruction of the healthy cells happening at the same time. I am not risk adverse, but taking educated risks is healthier than uneducated, naive and I-choose-not-to-think risks. SOMEONE, ANYONE, give me an amen.

Until you have received a diagnosis that changes your life forever because you took Zantac for an ulcer or used talcum powder to freshen yourself up…or watched a child suffer from Guillain-Barre after a flu vaccine, or are living with autism in your family because your child had the reaction that only a small percentage of people have, it may be in your best interest to make a decision that is right for you and not feel that you need to condemn those who may not agree. And please don’t ask those people who trusted once, to blindly trust again because if they don’t, they are hindering others from going to a concert. 

I commented on a few of these posts and the response was basically that because I have cancer, my circumstance is different and maybe I was over-reacting to the post. Ironic that one of those who thought I was overreacting was the Biology teacher that taught me about viruses to begin with. He is the reason I know that we can’t outrun a virus…it will always catch up through mutation. I respect his decision to vaccinate because he is elderly and wants to see his grandkids…but oohhh…anyone who knows me, knows that I advocate for boundaries, freedom and personal empowerment and I hate it when people try to shut me up by suggesting I might be overreacting. Didn’t your mama tell you to never tell a woman to calm down when she is just getting started?

Wanna know something funny? The literature that comes with my chemotherapy says in bold print: DO NOT RECEIVE VACCINATIONS OF ANY KIND WHILE ON THIS TREATMENT. ALSO, REFRAIN FROM CONTACT WITH ANYONE WHO HAS BEEN RECENTLY VACCINATED. I don’t know why this warning on a box of poison makes me crack up. Don’t be near anyone who has recently been vaccinated? Think that one through as it should inform anyone who is wondering about how to protect themself, either with a vaccine or otherwise.

I am fortunate. It turns out that despite being exposed to Covid several times, the most I seem to get is what feels like a bad cold. My health limitations do not seem to be a hinderance but I can’t help but wonder if the fact that I do know what is in my food, shampoo, deodorant and cleaning products is helping me fight from a position of strength. I actually research vaccines before blindly accepting them after I watched my daughter loose the use of her legs for 3 days after a routine flu vaccine and was told we got lucky because the paralysis wasn’t permanent. Maybe this is why I choose to understand my risks and not just follow the crowd out of fear. 

Many of my clients have shared that they are exhausted by the shaming that comes with having a counter cultural thought process, and I am not just talking about vaccines. Are you living life in fear, by letting others coax you into decisions that don’t feel right for your situation or are you making your decisions from a place of confidence, after doing research that matches your life situation? Are there other situations in your life, marriage, job, education and family where you see this pattern? Fear based decisions or choices made because people have made us feel bad, are rarely our best decisions. I encourage you to advocate for yourself in your relationships, your job, and your health by knowing what risks you are taking,  and evaluating whether or not the outcome will be worth it to you.

And when you make a decision that is right for you, I will be the first to cheer you on.

As always, let me know if I can help.

With love,

Sonia

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Ministry Update: 2020 was busy!

I lit a candle for my health in this church in Croatia…not my normal tradition but it will always be special to me now in light of this past year.

2020 sure did bring some surprises to my ministry but thankfully, the Lord provided many opportunities for great connections!

I started 2020 working a Thrive retreat in Croatia, just when Covid was ramping up in nearby Italy. It was a last minute trip for me as I had to raise those funds in a very short window after serving in Estonia the previous Fall. Obviously, I had no idea at that time, what crazy times were on the horizon. It felt like as soon as the team landed back in the United States, everything started to shut down. Thrive retreats scheduled for later in the year were all cancelled.

Fortunately, my role as lead mentor for Thrive’s Alongside ministry did not stop because of The Rona. We continue to meet the needs of women serving overseas via online applications like Zoom and FaceTime. Thrive launched an online retreat called Gather and our numbers of mentor and mentee connections continue to rise. I am currently managing a team of 25 mentors who meet with 1-3 women apiece. We are excited about this growth and anticipate even more connections after another Gather event in February 2021. Of course, our prayer is that in-person retreats will resume as well in this next year. I plan to jump into action as soon as it is possible to do so.

In addition to working with Thrive, I continue to offer discounted and free counseling to many women I have met over the years in my travels. These sessions are made possible through donations from my supporters, who I am grateful to, for their ongoing support during this tumultuous year!

Many of you have been so supportive as I continue to battle cancer on a daily basis. I SO appreciate your kind notes and encouraging comments on social media. What a blessing to feel the love when I am at those icky doctors appointments! You may be wondering how this changes my work life. Honestly, it doesn’t. While the chemotherapy and the infusions can be rough, I have found that I do better if I keep a busy schedule. Focusing on my clients, who I meet with via Telehealth, is invigorating and I do not plan to end my time in private practice anytime soon. In fact, Telehealth has made it possible for me to travel to Phoenix monthly for treatment and not miss a beat with my clients. And PRAISE THE LORD…my new protocol continues to bring positive results. I have a great team of doctors who are all working to get me the treatment I need, with the least possible side effects. Some days are rough but most days I live life fully.

For 2021, I am again hoping to raise $18,000 to cover all my ministry expenses. I ask that you consider my ministry as you are making decisions about your year end giving and your philanthropy for the coming year. I know there are many worthwhile causes out there so I am grateful to those of you who continually put your trust in my work. You can donate here…Thank you for your sacrificial giving!

A strange blessing for me this past year is that my almost 7 year battle with cancer prepared me for life in a pandemic. I was wearing masks and over sanitizing long before the whole world shut down. I remember many plane flights in my past where folks would obviously avoid sitting next to me in my mask that I had to wear. Now I am one in the crowd and no one stares at me! I wasn’t afraid in the old days and I am not afraid now. Isn’t it comforting to know that our days are numbered by the Lord and the best place to be is in His will?

Blessings to all of you. My prayer for you as we enter 2021 is that God’s plan for your life will be clear to you in 2021!

With love,

Sonia

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ADHD: Anything other than meds?

I used to be a high school teacher, so I am well aware of what it is like to have kids with Attention Deficit Hyperactivity Disorder, as students in a class. One of my most memorable parent-teacher conferences was with a student and their father, where the father kept getting up to “roam” as we discussed how to manage his child in class. If dad can’t sit through a 30 minute conference….I wish I had known then, what I know now!

As I work with parents who are navigating online school during this Covid season, many parents are understanding how frustrating it can be for their students who struggle with focus. I can also imagine that there are some teachers out there, who are welcoming this season of parents gathering awareness, of what their child is like in class. Hopefully this post will give both parents and teachers some ideas! ADHD can be very manageable and some of the most talented people overcome the limitations of ADHD, and use the energy of this condition to do AMAZING things! Never use diagnosis as a lifetime limitation. Use it to empower!

For those of you who are wondering if your child has ADHD, here is a good definition for you:

Attention deficit hyperactivity disorder (ADHD) is a mental health disorder ( I prefer the word “condition”) that can cause above-normal levels of hyperactive and impulsive behaviors. People with ADHD may also have trouble focusing their attention on a single task or sitting still for long periods of time. Both adults and children can have ADHD.

It is important to remember that everyone has “wiggles” that need to get out, through exercise and movement. It is not good to diagnose every kid who has some extra energy as ADHD. But if you notice that even with lots of exercise and a good amount of breaks from concentration, you or your child have wandering thoughts, lack of focus, inability to complete regular tasks, poor job performance, and issues with relationships, spurred from an inability to stay attentive in conversation, it might be something you consider. Always seek professional advice before starting a protocol.

Some common medications being used right now for ADHD are Contempla, Mydayis, and Strattera. While the results vary, many people do not like the side effects that can come with taking these drugs: fatigue, nausea, dry mouth, dizziness, bad mood. People are sometimes forced to choose between the side effect and the original struggle. The good news is that an ADHD diagnosis does not always end in taking medication. Everyone needs to choose what is best for their situation.

If you are feeling like “something has to change” but you are hesitant to go the medication route, maybe try some of these ideas!

Diet:
The first place to start is with diet. Did you know that there are some foods known to trigger ADHD? Foods such as milk, chocolate, soy, wheat, tomatoes, grapes, oranges and corn have been found to cause ADHD reactions in a large number of people. Additionally, foods rich in protein, lean beef, pork, poultry, fish, eggs, beans, nuts, soy, and low-fat dairy products, can have beneficial effects on ADHD symptoms. (Protein-rich foods are used by the body to make neurotransmitters, the chemicals released by brain cells to communicate with each other. Good to know if you have a family member struggling!)

A good book to take a look at is The ADHD Diet by Martin Meyer. (Amazon)  It is full of ideas to get your body working on your side!


Can Do Sitting Wedge:
Often times wiggling produces stimulation, resulting in more wiggling. Help yourself or your child sit still with a comfortable wedge that reduces stimuli and allows focus through less movement. These wedges are also good for posture and achy backs so it is a win-win. Click here for this much needed tool. 

Exercise:
Folks with ADHD need breaks from sitting still, more than most. Having a mini trampoline close to a work area is such a great idea for getting some energy out quickly. Those working from home might break for a walk around the block. While a long workout can be helpful as well, short energy burst exercise can help with productivity during a school or work day. Also, if your child has an opportunity to be part of an athletic team, take advantage of that! And don’t take those activities away, as a punishment, or you will only be punishing yourself!

Homeopathic supplement:
I always like to include a homeopathic remedy in my posts! Homeopathic remedies can be purchased at your local health food store or online and are often a good thing to try before you go the prescription drug route:

Hyoscyamos 6c twice daily for a period of months. Evaluate at 6 weeks and discontinue if there are no results. As always, consult your pharmacist for drug interaction with any prescriptions you might be already taking. Unlike prescription drugs, homeopathic supplements do not create artificial stimulus so do not use this for staying awake longer or creating hyper focus, as it won’t work that way.

Limit time on devices:
Oh…this is so hard nowadays! But just because your sweet child finally calms down when they are allowed to veg-out with their phone or the TV, you are setting them up have disrupted sleep (which is bad for ADHD) and restlessness later in the day. The reason is that devices are full of stimuli! And stimuli, for someone with ADHD, causes more stimuli (remember the wedge?)….so calm down another way.

Of course, this is just a snapshot of what can be done for someone with ADHD but it might be just enough to get you on a productive path to emotional health. As always, let me know if I can help.

With love,


Sonia

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Community: Health depends on it

How could any of us know that when we read George Orwell’s 1984, in high school, we would actually live it one day? It was presented to us as Science Fiction, and something that was thought provoking. We should have read it like a training manual. One of the best quotes to describe our times, inside this epic piece of literature was:

“Freedom is the freedom to say that two plus two makes four.”

I sat with a client last week, who is as frustrated as the rest of us, with regulatory guidelines that keep her from interacting with friends and family. She said, “I know a lot of people, who also know a lot of people, and none of us know anyone who has died of COVID, so it is hard to understand why we can’t interact with one another.” She, like many of my clients, is fighting hard to keep upbeat, pushing off depression, during this time. Statistically, the numbers are staggering right now. Depression, anxiety, addiction, abuse…all on the rise. Some reports are showing a 30% increase in reported suicide attempts. At some point we need to consider that advocating for mental health is self defense, during this freedom-less time.

Recently, I ran across an article put out by the CDC, that warned about the dangers of isolation. Recent studies were cited in the article, studies that proved that Social isolation significantly increased a person’s risk of premature death from all causes, a risk that may rival those of smoking, obesity, and physical inactivity. Social isolation was associated with about a 50% percent increased risk of dementia. As a mental health professional, I am appalled that along with suggestions of social distancing and mask wearing, there were not guidelines of how to maintain a healthy emotional state during this time. I see firsthand the damage as I sit with clients (all via Telehealth now!) on a regular basis, who now struggle with increased anxiety and depression or who never experienced symptoms before, but are now battling sluggishness, sleeplessness, lethargy, hopelessness, lack of motivation, apathy, and many other symptoms associated with depression.

I am an introvert, who already worked from home as much as I went into my office. So, at the beginning of the shutdown, my life did not change as much as it did for others who were working from home for the first time. But I knew, that over time, the shutdown would start to feel suffocating, even to my love-my-alone-time-self, if I did not proactively make sure that I had community during the weeks (who knew it would be months!) ahead. I immediately put a plan in place for myself that included my neighborhood besties, who live, work and shop at my same haunts, so our exposure is almost identical. We met regularly, but were careful and responsible, so much so, that one of our members had COVID and the rest of us stayed healthy! Having this interaction made this shutdown doable for us. Some people have openly criticized my willingness to risk human interaction at the level I have chosen, because they know that I am immune compromised. For me, mental health is as important as physical health. How do you think I continue to beat the life sentence I have been given?

What are you doing to keep human interaction at a healthy level? What are you doing to protect your mental health and thus, your survival?

I want it to be clear that I am not proposing that you engage in activities that put yourself at risk for the disease, just so you see people face to face. I do not encourage the immune compromised to rub shoulders with strangers during this time. But most of us have the ability to find a team of people to do life with strategically and still minimize risk.

One of the personal victories that I had during this shutdown came from a proactive attempt to create community. Mike and I have been doing church virtually for the last four years, partially for my health, as I have been a germ avoider for the last 6 years. It was also fun to “attend” the same church as our kids living in Waco, TX. So, when Antioch of Waco offered the opportunity to join an online small group during the shutdown, we took a risk and joined a group. We now have friends that we have met with weekly for the last 18 weeks….who knew?

I encourage you to take a look at this short report that gives some support for maintaining contact with other humans: https://www.khca.org/files/2015/10/8-Reasons-Why-We-Need-Human-Touch-More-Than-Ever.pdf. If you are struggling to feel purposeful, or you find yourself not caring about the future or you are just sleepy all the time, you may be on the brink of a deeper dive into depression that could be reversed with some human interaction. The risk might be worth it, especially if done with care.

As always, let me know if I can help.

With love,

Sonia